QUEST
Volume 13, Numero 3,
Può/June 2006

COVER

• Medicinal Music
  Bass guitarist Tristan Archer, 13, of Austin, Texas, gioca a a teen rock concert con his band, Guess. Lui’s un of molte musicians con neuromuscolare malattie who find music healing to their uores e souls. Photo by Carolyn Coffey
  
  
  

   

CARATTERISTICHE

• Mending the Membrane, priming the Pump
  MDA scientists foresee a promising future per cardiaca care in distrofie muscolari.
  
  
  
• parenting
  Quest offers ideas per risultati sitters e keeping teens busy.
  
  
  
• Kids Like Me on TV
  Più giovanisters con disabilities sono appearing in movies e TV mostra, ma it still isn't abbastanza.
  
  
• Funding Freedom
  Does your state offer un Alternative Financing Program? Se so, it could help you purchase a van, a computer o home modificazioni.
  
  
• Rimanere in piedi Tall per MDA

• MDA Matters
  
  
  
• Connections —
  Meet Lorinda Gonzalez
  
  

• Come the Wheel Turns —
  Pool Lifts e Financing Wheelchairs
  
  
  
• Quest Extra —
  E-books, skydiving, do-it-yourself
  
  
  
• dal Dove I Sit —
  A Perpetual Balancing Agisce

• MDA Iniziante Prime U.S. Duchenne Gene Terapia Trial
• Topo Studi Bode Well per Esone Skipping in DMD
• Più Genes Implicated in Charcot-Marie-Tooth
• Proteina Varianti Può Piombo to Miastenia grave
• Membrane Danneggiamento Added to FSHD Picture
• Clinica Trials e Studi
  • Genzyme Seeks FDA OK per Pompe's Trattamento
  • Etanercept Study in IBM Somewhat Encouraging
  • nella MELAS, Effetti collaterali of DCA Outweigh Benefits
  • Genetica Miotonie Topic of NIH Study, Trial Plans
  • CoQ10 Carenza Rare e Easily Treatable
  • FDA Asks CepTor per Più Data per DMD Test